Niemann Pick Type C

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

National Niemann-Pick Disease Foundation, Inc.

International network. Founded 1992. Provides support for families affected by Niemann-Pick disease type A, B and C. Promotes and supports research. Provides newsletter, family directory, networking, family conference, phone support, information and referrals. Guidelines available to help start similar groups.
Write:
National Niemann-Pick Disease Foundation
PO Box 49
415 Madison Avenue
Ft. Atkinson, WI 53538
Voice: 920-563-0930
Fax: 920-563-0931
Website: http://www.nnpdf.org
E-mail: nnpdf@idcnet.com
Verified: 9/21/2011

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