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This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

United Leukodystrophy Foundation, Inc.

National network. Founded 1982. Provides information and resources for leukodystrophy patients and their families. Communication network among families. Promotes research, public and professional awareness. National conference and quarterly newsletter. Dues $25/family; $50/professional.
United Leukodystrophy Foundation, Inc.
224 N. 2nd St., Ste 2
DeKalb, IL 60115
Voice: 1-800-728-5483 or 815-748-3211
Fax: 815-748-0844
Website: http://www.ulf.org
E-mail: office@ulf.org
Verified: 1/8/2013

MLD Foundation

Online. Support for parents and caregivers of children with metachromatic leukodystrophy.
MLD Foundation
21345 Miles Drive
West Linn, OR 97068-2878
Website: http://mldfoundation.org
E-mail: info@mldfoundation.org
Verified: 1/9/2013

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First Nurse

First Nurse

Call First Nurse 24 Hours a Day for free health care advice, resources and referrals!

Ames: 515-239-6877
In Iowa: 800-524-6877 

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