Ataxia

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

INTERNAF

Online. Provides support via an international e-mail based forum to exchange information and support for those who are diagnosed with ataxia. Open to patients, families and friends. Also has links to yahoo support group and other worldwide support groups online.
Website: http://internaf.org
Verified: 3/5/2014

Friedreich's Ataxia Parents Group (FAPG)

Online. Support for parents and guardians of children with Friedreich's Ataxia or other childhood onset ataxias.
Website: http://www.faparents.org
Verified: 3/5/2014

National Ataxia Foundation

International. 53 support groups. Founded 1957. Assists families with support programs, ataxia information and resources. Provides education for professionals and the public. Promotes research into causes and treatments of ataxia. Newsletter, assistance in starting support groups, organizing fundraisers, and various Fact Sheets are available.
Write:
National Ataxia Foundation
2600 Fernbrook Lane Suite 119
Minneapolis, MN 55447
Voice: 763-553-0020
Fax: 763-553-0167
Website: http://www.ataxia.org
E-Mail: naf@ataxia.org
Verified: 2/20/2014

Living with Ataxia Discussion Forum

Online. 1400 members. Provides support for persons living with ataxia. Offers chat room, forum. blogs and information for patients and their caregivers.
Website: http://www.livingwithataxia.org
Verified: 11/7/2013

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