Celiac Disease

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Celiac Disease is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • Celiac Sprue
  • Gluten-sensitive Enteropathy
  • Nontropical Sprue
  • CD
  • Gluten Enteropathy
  • GSE

Disorder Subdivisions

  • None

General Discussion

Celiac disease is a digestive disorder characterized by intolerance to dietary gluten, which is a protein found in wheat, rye, and barley. Consumption of gluten leads to abnormal changes of the mucous membrane (mucosa) of the small intestine, impairing its ability to properly absorb fats and additional nutrients during digestion (intestinal malabsorption). Symptom onset may occur during childhood or adulthood. In affected children, such symptoms may include diarrhea, vomiting, weight loss or lack of weight gain, painful abdominal bloating, irritability, and/or other abnormalities. Affected adults may have diarrhea or constipation; abdominal cramping and bloating; abnormally bulky, pale, frothy stools that contain increased levels of fat (steatorrhea); weight loss; anemia; muscle cramping; bone pain; exhaustion (lassitude); and/or other symptoms and findings. Although the exact cause of celiac disease is unknown, genetic, immunologic, and environmental factors are thought to play some role.

Resources

Gluten Intolerance Group of North America
31214 124th Ave SE
Auburn, WA 98092
Tel: (253)833-6655
Fax: (253)833-6675
Email: info@gluten.net
Internet: http://www.gluten.net

Celiac Sprue Association
P.O. Box 31700
Omaha, NE 68131-0700
USA
Tel: (402)558-0600
Fax: (402)643-4108
Tel: (877)272-4272
Email: celiacs@csaceliacs.org
Internet: http://www.csaceliacs.org

NIH/National Institute of Diabetes, Digestive & Kidney Diseases
Office of Communications & Public Liaison
Bldg 31, Rm 9A06
31 Center Drive, MSC 2560
Bethesda, MD 20892-2560
Tel: (301)496-3583
Email: NDDIC@info.niddk.nih.gov
Internet: http://www2.niddk.nih.gov/

Celiac Disease Foundation
20350 Ventura Blvd
Ste 240
Woodland Hills, CA 91364
USA
Tel: (818)716-1513
Fax: (818)267-5577
Email: cdf@celiac.org
Internet: http://www.celiac.org

R.O.C.K. (Raising Our Celiac Kids)
3527 Fortuna Ranch Rd
Encinitas, CA 92024
USA
Tel: (858)395-5421
Fax: (858)756-0431
Email: info@celiackids.com
Internet: http://www.celiackids.com

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

Center for Peripheral Neuropathy
University of Chicago
5841 South Maryland Ave, MC 2030
Chicago, IL 60637
Tel: (773)702-5659
Fax: (773)702-5577
Internet: http://peripheralneuropathycenter.uchicago.edu/

Madisons Foundation
PO Box 241956
Los Angeles, CA 90024
Tel: (310)264-0826
Fax: (310)264-4766
Email: getinfo@madisonsfoundation.org
Internet: http://www.madisonsfoundation.org

Autoimmune Information Network, Inc.
PO Box 4121
Brick, NJ 08723
Fax: (732)543-7285
Email: autoimmunehelp@aol.com

International Scleroderma Network
7455 France Ave So #266
Edina, MN 55435-4702
Tel: (952)583-5735
Tel: (800)564-7099
Email: isn@sclero.org
Internet: http://www.sclero.org

European Society for Immunodeficiencies
1-3 rue de Chantepoulet
Geneva, CH 1211
Switzerland
Tel: 410229080484
Fax: 41229069140
Email: esid@kenes.com
Internet: http://www.esid.org

National Foundation for Celiac Awareness
P.O. Box 544
224 South Maple Street
Ambler, PA 19002
Tel: (215)325-1306
Fax: (215)643-1707
Email: info@celiaccentral.org
Internet: http://www.CeliacCentral.org

CORE
3 St. Andrews Place
London, NW1 4LB
United Kingdom
Tel: 02074860341
Fax: 02072242012
Email: info@corecharity.org.uk
Internet: http://www.corecharity.org.uk

Coeliac Society of Australia Inc.
Suite 1, 41 - 45 Pacific Highway
Waitara, NSW 2077
Australia
Tel: 0294875088
Fax: 0294875177
Tel: 1800458836
Email: info@coeliacsociety.com.au
Internet: http://www.coeliacsociety.com.au

Medical Home Portal
Dept. of Pediatrics
University of Utah
P.O. Box 581289
Salt Lake City, UT 84158
Tel: (801)587-9978
Fax: (801)581-3899
Email: mindy.tueller@utah.edu
Internet: http://www.medicalhomeportal.org

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  3/28/2008
Copyright  1986, 1989, 1992, 1996, 1999, 2000, 2002, 2004 National Organization for Rare Disorders, Inc.

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