Thoracic Outlet Syndrome

National Organization for Rare Disorders, Inc.

Important
It is possible that the main title of the report Thoracic Outlet Syndrome is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.

Synonyms

  • TOS

Disorder Subdivisions

  • arterial thoracic outlet syndrome
  • Paget-Schroetter syndrome
  • neurogenic thoracic outlet syndrome
  • nonspecific thoracic outlet syndrome
  • vascular thoracic outlet syndrome
  • venous thoracic outlet syndrome
  • pectoralis minor syndrome

General Discussion

Thoracic outlet syndrome (TOS) is a condition presenting with arm complaints of pain, numbness, tingling and weakness. The cause is pressure in the neck against the nerves and blood vessels that go to the arm.

There are three types of TOS depending on which structure is being compressed:
1. Neurogenic TOS-nerve compression comprises 95% of all TOS patients

2. Venous TOS-compression of the main vein comprises 4% of all TOS patients

3. Arterial TOS-compression of the main artery comprises less than 1% of all TOS patients

4. Vascular TOS is a term sometimes used but there is no such entity as vascular TOS. The term refers to TOS due either to compression of an artery or vein (arterial or venous TOS). The appropriate terms, arterial or venous, should be employed and the term vascular discarded.

The three types of TOS are very different from each other. Each will be described separately.

Resources

American Chronic Pain Association
P.O. Box 850
Rocklin, CA 95677
USA
Tel: (916)632-0922
Fax: (916)652-8190
Tel: (800)533-3231
Email: ACPA@theacpa.org
Internet: http://www.theacpa.org

NIH/National Institute of Neurological Disorders and Stroke
P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424
TDD: (301)468-5981
Internet: http://www.ninds.nih.gov/

United Brachial Plexus Network
1610 Kent Street
Kent, OH 44240
Fax: (866)221-2821
Tel: (866)877-7004
Email: info@ubpn.org
Internet: http://www.ubpn.org

Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311
TDD: (888)205-3223
Internet: http://rarediseases.info.nih.gov/GARD/

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email orphan@rarediseases.org

Last Updated:  3/19/2012
Copyright  2009, 2012 National Organization for Rare Disorders, Inc.

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