Hermansky-Pudlak Syndrome

Self Help Clearinghouse

This information is provided as a resource and does not constitute an endorsement for any group. It is the responsibility of the reader to decide whether a group is appropriate for his/her needs. For evidence-based information on diseases, conditions, symptoms, treatment and wellness issues, continue searching this site.

Hermansky-Pudlak Syndrome Network

International network. 2 affiliated groups. Founded 1992. Mutual support and education for families affected by Hermansky-Pudlak Syndrome and Chediak Higashi Syndrome. Networks families together for support. Newsletter and annual conference. Supports research.
Write:
Hermansky-Pudlak Syndrome Network
c/o Donna Jean Appell
1 South Rd.
Oyster Bay, NY 11771-1905
Voice: 1-800-789-9477 or 516-922-4022
Fax: 516-624-0640
Website: http://www.hpsnetwork.org, http://www.hermansky-pudlak.org or http://www.chediak-higashi.org
E-Mail: dappell@hpsnetwork.org
Verified: 2/27/2014

This information does not replace the advice of a doctor. Healthwise, Incorporated disclaims any warranty or liability for your use of this information. Your use of this information means that you agree to the Terms of Use. How this information was developed to help you make better health decisions.

Healthwise, Healthwise for every health decision, and the Healthwise logo are trademarks of Healthwise, Incorporated.

Additional Resources

First Nurse

  • First Nurse: Talk to one of our nurses 24 hours a day for free health care advice, resources and referrals! Call 515-239-6877 or 800-524-6877.
  • Health Library: Search our online library containing information on health conditions, medications, medical tests, and more.

Symptom Checker

Use our interactive symptom checker to evaluate your symptoms and determine appropriate action or treatment.

Symptom Checker