Tourette Syndrome

National Organization for Rare Disorders, Inc.

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It is possible that the main title of the report Tourette Syndrome is not the name you expected.

Disorder Subdivisions

  • None

General Discussion

Tourette Syndrome is a hereditary neurological movement disorder that is characterized by repetitive motor and vocal tics. Symptoms may include involuntary movements of the extremities, shoulders, and face accompanied by uncontrollable sounds and, in some cases, inappropriate words. Tourette Syndrome is neither a progressive nor degenerative disorder; rather, symptoms tend to be variable and follow a chronic waxing and waning course throughout an otherwise normal life span. The specific symptoms associated with Tourette Syndrome often vary greatly from case to case. The exact cause of Tourette Syndrome is unknown.

Supporting Organizations

Child Neurology Foundation

201 Chicago Ave, #200
Minneapolis, MN 55415
Tel: (952)641-6100
Fax: (952)881-6276
Tel: (877)263-5430

Genetic and Rare Diseases (GARD) Information Center

PO Box 8126
Gaithersburg, MD 20898-8126
Tel: (301)251-4925
Fax: (301)251-4911
Tel: (888)205-2311

Medical Home Portal

Dept. of Pediatrics
University of Utah
Salt Lake City, UT 84158
Tel: (801)587-9978
Fax: (801)581-3899

Movement Disorder Society

555 E. Wells Street
Suite 1100
Milwaukee, WI 53202-3823
Tel: (414)276-2145
Fax: (414)276-3349

NIH/National Institute of Neurological Disorders and Stroke

P.O. Box 5801
Bethesda, MD 20824
Tel: (301)496-5751
Fax: (301)402-2186
Tel: (800)352-9424

New Horizons Un-Limited, Inc.

811 East Wisconsin Ave
P.O. Box 510034
Milwaukee, WI 53203
Tel: (414)299-0124
Fax: (414)347-1977

Tourette Syndrome Association, Inc.

42-40 Bell Boulevard
Bayside, NY 11361
Tel: (718)224-2999
Fax: (718)279-9596
Tel: (888)486-8738

Tourette Syndrome Foundation of Canada

5945 Airport Rd - Suite #195
Ontario, L4V 1R9
Tel: 9056732255
Fax: 9056732638
Tel: 8003613120

For a Complete Report

This is an abstract of a report from the National Organization for Rare Disorders (NORD). For a full-text version of this report, go to and click on Rare Disease Database under "Rare Disease Information".

The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only.

It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report.

This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.

Last Updated:  10/12/2007
Copyright  2007 National Organization for Rare Disorders, Inc.